God"s Unfailing Love

So Thankful for such a wonderful weekend spending time with the Lord. Friday my husband gave me a wonderful night away. I got to leave early friday morning and go get a much needed massage at Glen Ivy :) Then I headed down to Dana Point. I can not tell you how nice it was to be in the word and prepare for speaking at the ladies tea with out any distractions. I got some much needed alone time. It made me a much better mommy and wife when I returned Saturday afternoon. The Tea was absolutely beautiful. We have such talented ladies who are so creative with there tables. It was just so nice to be in the company of wonderful woman. After I spoke at the tea a lady and her daughter came up to me. They explained some ailments that there daughter was having that were very similar to mine. They explained that the doctors have never been able to diagnose some of the symptoms. They said she was so depressed and tired of not getting any answers. She has never seen a neurologist and had never thought too until hearing my story. I agreed to meet with the daughter some time soon. I was brought to tears. The Lord is already using this trial and if I were to choose to wallow in my diagnoses I would miss all that God is doing. He is always there and we need to trust him that he is working out his plan. It was a beautiful day. Saturday night was time spent with the family and then today has been a beautiful reflection on the book of Isaiah. Our church has spent the last couple of years going through the book of Isaiah. Today we had a reflection service and it was very moving. This weekend seems to be themed around God's Unfailing Love.

How have you all seen God's Unfailing Love ? I would love to hear.

A brief update

Last Friday I had an EMG test done. I'm not gonna lie it was just plain awful. I have bruises from all the needle injections :) The doctor said that he only found traces of the Myotonia in two areas of my body. He said it wasn't wide spread enough to get a confirmation of the disease. He would like me to do some genetic testing. This requires approval from my insurance. It is a blood test that needs to be read in a special lab. I left the appointment more confused and frustrated that we still did not have a solid answer and that it is going to take 6 more weeks until we know more information. The planner in me wanted answers so that I could move forward with the next steps. I quickly remembered that God is in control and know without a doubt that he will be building my patience and character through this long wait. I hate how I quickly forget how faithful he has been in my life and has always done amazing things. I forget to ask him for total healing. I certainly know he has the ability and he can choose to if he desires. I have requested to see another neurologist to get a second opinion. I could not get into see him until next month. I laugh because I'm always telling my kids to be patient and I often struggle with it so much more. I know I will eventually get answers so for now I will rest in the fact that I know my God is in control and he is walking with me every step of the way. Thanks for all your sweet words of encouragement and prayers.

Seeing God through the Craziness.

I apologize for being MIA. I have been extremely tired and busy. I have had so many ideas for blog entrys and no energy to sit down and post them. With birthdays, t-ball, homeschool, end of the year stuff, Easter, Mothers Day,The Ladies Tea, Husband traveling for work and planning his China trip life has been CRAZY BUSY. As if that wasn't enough. After a few years of trying to figure out my weight loss and muscle weakness we finally got some answers. I saw a Neurologist last week and he is pretty certain that I have Myatonic Dystrophy. Whaaaaattt? I know I had the same reaction. Not exactly the funnest words to hear. Myatonic Dystrophy is a form of Muscular Dystrophy. It is uncureable and the progression affects everyone differently. There are many forms so we are having tests to find out exactly which form I have. I really feel strongly that the Lord had been preparing my heart for this news. I was asked to speak at our Ladies Tea at church a couple of months ago. I nervously said yes. The theme is on God's Unfailing Love and I have been spending time in the word reading about God's love in the midst of suffering. This is no coincidence. Also the night before my appointment I was looking stuff up online. I was getting nervous as I read more life threating diseases that I had symptoms for. So when I got the news the next day I was thankful that the doctor did not say it was any of the ones I had read up on. This has been a lot to take in and figure out exactly what this is going to look like for the future. I know however that I just want to be used by God in every situation I'm dealt with. I know that he will use this for his glory and I will see him in beautiful ways. He has blessed my life in more ways than I ever deserve. We serve a wonderful God who holds us in the palm of his hand and wants only the best for his people. He never promised us a nice comfortable life on Earth but he has promised us eternity with him with no suffering and no pain. Oh how I long for the day to see my savior face to face. This news will not crush my spirit but make me believe stronger in the things My Lord can do. Nothing is impossible with God. He works together all things for good for those who believe in him. We would appreciate all your prayers. More details to come.

Celebrating the big 5

It has been so much fun celebrating our sweet Jonah's fifth Birthday. Yesterday we had a fun day doing things Jonah likes, cinnamon muffins, lunch at Chik-Fil-A and Pizza dinner with grandma and papa. Today daddy took a half day and surprised him with a trip to the movies just the two of them. We had a family party tonight and tomorrow is Lego Land. I will post pictures soon. I can't believe he is five. I pray he always keep that smile on his face and the ability to make others laugh. he is such a joy and I feel so blessed to be his mommy.

A Beautiful Week

I really enjoyed soaking in the beauty of the Resurrection story with my kids this week. We spent a lot of time in the word, reflecting and doing activities all having to do with the Easter story. Our church also held two special services this week. We had a Maundy Thursday service and Good Friday Service. After the Good Friday service Noah leaned over and said Mom I really feel Jesus in my heart tonight. I love that boy and how much he is growing in the Lord. Nothing warms my heart more. We had a full day of celebrating Easter with both sides of the family. Lots of food, fun and LOVE. It was an end to a beautiful day. Thank you Jesus for loving us so well and for paying the ultimate sacrifice for our behalf.

Recap From Our Trip

I have been recovering from our busy trip last week and things have not stopped since we have been home. I think I need a vacation to recover from my vacation Ha! Well N.Y. was fun and very interesting. I guess people probably say the same thing about L.A. I was so excited to see everything. We took the train from D.C. to N.Y. and it was a nice 31/2 hour relaxing ride. When we got off at Penn station I was overwhelmed. So many unique people swarming the streets. Jason said his favorite part of the trip was seeing my face when we walked off the train. It took me a few days to adjust. I think in the few days we were in N.Y. we probably walked a hundred miles. My legs were so sore. I Loved seeing Rockefeller center, Central Park, ground zero and eating amazing food. I was so happy to get the opportunity to join Jason. He travels so much and we don't usually get the opportunity to join him so it was great.

Yesterday we had the hardest day yet with Hannah. She was acting whiny and acting out and wanting to be held every two min and then let down and nothing could make her happy. It was hard on me emotionally and physically. Then today she was back to her normal self. It is so hard to figure out sometimes. She is getting a molar, we just got back from a trip, she was tired, we moved her into a new bed, is it adoption related? All these things go through my mind and when they are two they can't tell you so it's even harder. I was thankful to have a do over today and lay all things at Jesus's feet. We have been enjoying going through the easter story with our children. It was emotional for me today as we read how Jesus washed his disciples feet and to think how humbling of an act that was. What a beautiful picture of Christs love for us. I'm so thankful for the gift and sacrifice he gave.

Enjoying D.C.

We have been enjoying our time in D.C.. Hannah did amazing on the flight. Dr. Chang wanted her to have oxygen on the plane as a precautionary. I thought she was going to battle us the whole time. She did not enjoy it but kept it on the entire time. She fell asleep right before we took off and we thought what a perfect child this is going to be the easiest flight :) well 20 minutes in and she woke up crying. I knew that was too good to be true. Ha! I think her ears hurt. After something to drink and blues clues she was a happy girl again. We got in pretty late so she crashed and slept the whole night through yeah!. The next day we were up and ready to explore. I really wanted to see the white house so we got on the subway and began to explore. We found out that they were giving tours of the White House Gardens and that it only happens two weekends out of the year. Woo! Hoo! It was Beautiful. We had a really great time. we also saw the Washington Monument where they were holding a kite festival. I thought of our boys the whole time and how much they would have enjoyed it. We really want to come back with them sometime. It has been really nice though being able to give Hannah so much of our attention. She has been the happiest little thing however not a day has gone by where she hasn't asked for her brothers. This morning we visited our adoption agency in Virginia. Everyone was so nice. They gave us a tour and gave Hannah a sweet stuffed bear. It was so great being at a place that makes so many families dreams come true including ours. What an amazing agency. Thanks AWAA. We spent the rest of the day back in D.C. where we visited the Capital and the Botanical Gardens. Tomorrow we take the train to N.Y. It has been so relaxing and fun to experience so many new things.