Active Again

I know it's been awhile since my last post.  We have been recouping from this viral infection Noah caught.  We knew it was bound to happen.  Even though  I had been faithfully, sanitizing, passing out vitamins and filling there belly's with Emergen-C there is just no avoiding it. Whenever Noah gets a fever we have to let the transplant team know so they can put him inactive on the list.  He needs to be free from infection to accept his new heart.  I have to say in a small way it was nice to not have to worry when my phone rang or be in a panik that at any moment we could get "The Call".  We are however thankful that Noah will be put active on the list again tomorrow. Thankful because its what he needs to continue to survive and feel good again.  We took Noah to see Dr. Chang today and he is putting him on a Beta Blocker medication.  We are awaiting the Treclear in the mail that Dr. Alejos ordered him that will help prepare his lungs for transplant.  This will make three, which to some may not seem so bad.  But a few months ago he wasn't on any and soon he will be on 15.  It's a lot sometimes for us to process as these things become our new way of life.  We know were not alone in this and that help us get through this not so fun road.

Please continue to pray for Noah.  We have updated his prayer map.  If you are praying for Noah in one of the states that doesn't have a heart sticker, please let us know we would love to add you and fill up his map.

Check out what amazing things God is doing with Ivy.....

A lot of you have prayed with me for sweet Ivy Joy and I just want to share her latest miracle-

God is always moving mountains as you will read on Mary's blog

(click here),