Thankful

Thanksgiving is fast approaching and we have so much to be thankful for:

 Our sweet boy has made it almost three years since his first diagnosis in January 2012.  He has been on the transplant list for over two years now and has remained hospital free.  I can't tell you what joy it brings me to see some of you still faithfully wearing your bracelets.  Eric Twisselmann I was brought to tears the other day when I saw you on stage sporting your faded bracelet. I love how worn it was.  It was so faded the words were washed away but I could still tell what it represented and was so beyond grateful to see the support. I know so many of you are still so faithfully praying and we can't thank you enough.  We are so thankful Noah has remained well.  His pressures are stable for now but we don't know for how long so we celebrate today and the last few years knowing things could dramatically change tomorrow.  Really it's how we all should be living, thankful for today not knowing what tomorrow may bring.  Can I get an Amen?  Our sweet boy still needs a new heart but only God knows the timing.  He remains on the transplant list and we remain hopeful that it's in God's control and not our own.

I'm also thankful for the gift of driving and for the muscles in my body that still work.
As this muscle disease continues to progress it brings me more and more thankful for an amazing husband who carries his bride and lessens her load, supportive friends, family, adaptive equipment, and God's grace.

I'm thankful for our sweet girls successful surgery.  She is doing amazingly well and there have been no  surprises.  She loves that her momma has a pacer just like her.  She has regular check ups and positive reports.  So thankful.

Last we are thankful for all of you that would care enough to read our words and receive our updates.  It means so much to us.






Give thanks in all circumstances; for this is the will of God in Christ Jesus for you. (1 Thessalonians 5:18)