Sunday, July 10, 2011
So Much to share
So much has happened in the last few days I may need to do two seperate posts :) Well Thursday I called the doctor to find out the results for the genetic test we had done. They were testing to see if I for sure had Myatonic dystrophy DM1. Well even after two neurologist diagnosed me and said they were certain I had the disease, the test came back negative. Our heads were spinning. We were of coarse grateful but were also left with so many unanswered questions. What now? Well this morning we went back to the doctor to discuss the test and other possibilities. The Neurologist told us that since we tested negative for DM1 that he was certain I had Myatonic Dystrophy type 2. Confusing right? We knew that there were two different types but since the doctors were convinvced I had the first type DM1 we did not read much about DM2. It turns out DM2 is a milder form of the disease without a lot of the serious complications. The disease could progress but might not. Our boys still have a 50% chance of having this disease however with each pass down the symptoms are less and less. This was really great news to hear. Still not feeling confident this is what I have until I get the results back though :) I have seen the Lord perform miracle after miracle and am in awe of his power and his goodness and faithfulness in my life. He can always choose to to take this away completely and I don't ever want to lose sight of his ability and just accept what the doctors think. We are relieved and will keep focusing on gaining strength and putting our trust in the ultimate healer. Our prayer is that he will get the ultimate Glory no matter what the outcome is. Thanks for all your prayers and your words of encouragement they have meant so much to us.