I wish I had some really great news to share. We were so hoping that we would get approval for the transfer to UCLA and it was DENIED. So now the battle begins. The next step is to talk with our insurance broker on Monday. She has agreed to talk with Jason and we are praying she can help. We want her to help us switch to a PPO before open enrollment. We will also make an appeal against the medical group that denied us. The reason we want to fight so hard is because its the top rated heart transplant clinic in the nation, we have doctors over there that have taken a solid interest in Noah's case, they have worked hard, love our family and in some visits have not even charged us. Where we are at now, is with a doctor who has not shown any of those things, disagreed with said doctors, was proven wrong and put our son in danger. We have to fight. It's so hard to know what to do at times. I want to be in the Lord's will and can be so confused on what to do and how much to fight. Please pray that God would give us wisdom on how to navigate this whole process. We are confident all things will work together and that through the Lord nothing is impossible. Noah is still doing amazing. You look at him in disbelief that this is really happening. Sometimes we think it would be easier to accept if he actually looked sick but he looks great and we are thankful for that.
Noah's Aunt and Uncle started a facebook page called Noah's heart and are putting on a fundraiser. Check it out.