Choosing Joy

We have really been enjoying our Summer.  It has been so much fun checking things off our Summer Activity list.  We have had back yard movies, fancy movie night, camp out, smores, swimming, and a whole lot more.  We are so determined to have Joy and to model that to our children in the midst of this trial. We have been having so much fun and just making the most of every minute.  It would be too easy to be consumed with fear and to wallow in all the what if's.  We know with out a doubt that God is working all things together for good and are confident he is using so many of us.  Don't get me wrong we certainly have our days.  There are days that I cry out to the Lord for strength just to get out of bed, there are days that I ask him to take it all away, there are days that are just so hard because we hear information that is hard to swallow, and there are days where I picture my baby hooked up waiting for a heart and it is just too much to bare.   But seriously time and time again God shows up in the sweetest of ways.  God is really doing a work here.  So many of you have chosen to come along side of us through so many creative ways and seriously thank you just doesn't seem enough.  Please know that we are so grateful for all of you.  On August 1st Noah meets with Dr. Chang for an Echo and check up and then on August 9th we meet with the transplant team at UCLA.  We are so thankful to be at UCLA and are hoping to get lots of information and answers at that visit.  Noah has started taking revatio to increase his blood flow. He has responded fine to the medication and we will be able to tell from his echo if it is helping.  Noah is still complaining every so often that his heart feels funny but other than that you would never suspect he had a heart problem.  Thank you for your continued prayers.