I apologize for the lack of updates. Truthfully there is not much to report on. We are just waiting for the call. Noah continues to do well with the occasional bouts of fatigue. He is trying to stay healthy and our biggest prayer is he stays that way so that when we get the call he is well enough to accept the heart.
We had a chance to meet Aiden and his family for some fun dessert and fellowship last week. Aiden is the boy we met at the transplant party. He has the same diagnosis as Noah. He is 8 years old and had his heart transplant when he was just four years old. We had a wonderful time getting to know them and asking them more questions. We found out that the hardest part after transplant is adjusting to taking so many medications and the DIET. We were never told that the diet would be so extreme. No sugar, enriched flour, dairy, and fats. These foods can cause diabetes and other risky diseases due to the high immunosuppresants he will be on. WOW!! Jason and I both felt sad for Noah and scared at having to drastically change the way we eat and shop. Again Noah accepted this news as he always does with such maturity. He asked a lot of questions about what he can eat and is thinking of creative ways to make the recipes he enjoys. So if you have good recipes please pass them our way. He really inspires and encourages me to have the same attitude and perspective when things don't go the way I would like them to go. I just love that boy. He had the same response to his flu shot yesterday. He truly is one of a kind. I know I know I'm bragging but thats okay I'm his momma it's allowed :).
We had a wonderful Christmas and are just feeling so hopeful about this new year. We are right where the Lord wants us and we will continue to press on and live for our king. Seeking his will above our own. We don't want to waste this diagnosis but embrace it and view it as a way to honor the Lord and allow him to do his work through it. Last year I chose a word that I wanted to embrace for the coming year and that word was "Hopeful". I have to admit this one was a struggle for me at times but feel like I have more hope going into 2013 then I did at the beginning of 2012. The word I have chosen for 2013 is "Surrender". I want to surrender to the Lord's will above my own. Please pray that I would work on Surrendering it all. Laying it all at Jesus feet.
No comments:
Post a Comment