Update

I apologize for being so late on this update. It has been a CRAZY week. Not only did we have Noah's big Cath procedure, we had to go back to UCLA on Wednesday for a stress test, we put our house up for sale, and made an offer on a house all in the same week and it's only Thursday. This momma is T.I.R.E.D tired.

Noah's heart Cath went great. Their were no issues and Noah did great. His numbers have increased but are still in the lower normal range. The doctors feel like he can remain inactive for now. They will continue to see him frequently and monitor his symptoms. Because of the increase they would like to do another heart Cath in six months instead of 10-12 like normal. Over all we are so pleased with the outcome.  We wish his numbers would have improved but are thankful he is allowed more time.  Please continue to pray for Noah that he would remain strong and that his numbers would improve.

Why are we putting our house up for sale?  We have thought about moving for the last couple of years but the timing has not been right. Because of the type of progressing disease that I have we know that we will need a house that fits those needs as well as long term care.  We have loved our home and have put a lot of work into it however it saddens me not to be able to sit in my patio because of the number of stairs. We desire to live close to our church community and friends who can help shoulder the Load as things progress and become more difficult. We are praying that God would provide the perfect home for our families needs.

Thank you for continuing to walk along side of us and continually lifting us up in prayer. This morning I was so encouraged by the following passage and it was just another reminder to me that God is in the hardness of our stories and he is doing his glorious work. I hope it encourages you as well.

There are many black dots and black spots in our lives, and we cannot understand why they are there or why God permitted them to come. But if we let God come into our lives, and adjust the dots in the proper way, and draw the lines He wants, and separate this from that, and put in the rests at the proper places; out of the black dots and spots in our lives He will make a glorious harmony. Let us not hinder Him in this glorious work! —C. H. P.

Prayers Please

Dear Friends,

This Monday July 20th at 8:00a.m. Noah will be having his heart Cath Procedure at UCLA.  This is where they put him out and take a good look at his heart.  Back in September when they did this same test we got some AMAZING results.  We were stunned that the doctors told us his pressures were in the normal range.  This is when after consulting with the team we made the decision to make him inactive on the transplant list.  We have no idea why his numbers had increased.  The doctors think the medications have been helping but I give all the credit to our God.  We have been so thankful for this gift of time that has allowed us to have the freedoms to vacation and not be worried that at any moment we could get a call and onto the hospital for Transplant.  If his numbers have declined he will need to be active on the transplant list once again.  We want more than anything to avoid that step.  We would love more than anything for him to have more time, to be able to be a kid, to not have hospital stays, and meds that will hurt his body.  Please pray that the doctors would be pleased at his pressures and that his story would be one that points and gives credit to the Lord.  Pray that we would trust the Lord in whatever the outcome is for Noah. I have had an upset stomache all week and anxiety.  I thought I was doing ok until a few days ago. Pray that we would surrender our wants and desires and trust in God’s perfect plan for Noah.  I know I say this everytime but thank you for continuing to follow our journey and for your constant prayers.  I ran into a few people over the past few weeks that have told me that their kids pray for Noah every night and it brought such joy in my heart.  I pray that they would continue to see their prayers answered.

After waiting three years Noah finaly got to go to Hume Lake Camp this summer.  We all had a wonderful time and we felt so blessed to be up there.  This journey has caused me to not take certain things for granted.  I tried to soak in every moment realizing that it could be taken away from us again.  Thankful to the Lord for allowing us to enjoy moments like these and to create many wonderful memories to hold in our hearts.