This Monday July 20th at 8:00a.m. Noah will be having his heart Cath Procedure at UCLA. This is where they put him out and take a good look at his heart. Back in September when they did this same test we got some AMAZING results. We were stunned that the doctors told us his pressures were in the normal range. This is when after consulting with the team we made the decision to make him inactive on the transplant list. We have no idea why his numbers had increased. The doctors think the medications have been helping but I give all the credit to our God. We have been so thankful for this gift of time that has allowed us to have the freedoms to vacation and not be worried that at any moment we could get a call and onto the hospital for Transplant. If his numbers have declined he will need to be active on the transplant list once again. We want more than anything to avoid that step. We would love more than anything for him to have more time, to be able to be a kid, to not have hospital stays, and meds that will hurt his body. Please pray that the doctors would be pleased at his pressures and that his story would be one that points and gives credit to the Lord. Pray that we would trust the Lord in whatever the outcome is for Noah. I have had an upset stomache all week and anxiety. I thought I was doing ok until a few days ago. Pray that we would surrender our wants and desires and trust in God’s perfect plan for Noah. I know I say this everytime but thank you for continuing to follow our journey and for your constant prayers. I ran into a few people over the past few weeks that have told me that their kids pray for Noah every night and it brought such joy in my heart. I pray that they would continue to see their prayers answered.
After waiting three years Noah finaly got to go to Hume Lake Camp this summer. We all had a wonderful time and we felt so blessed to be up there. This journey has caused me to not take certain things for granted. I tried to soak in every moment realizing that it could be taken away from us again. Thankful to the Lord for allowing us to enjoy moments like these and to create many wonderful memories to hold in our hearts.