Friday, December 16, 2011
I have had such low energy lately and have desired to blog but it just wasn't happening. We have had a lot of fun things since my last post. The boys were in the Christmas musical through there homeschool program. Noah played one of the Angel Characters and Jonah played a star. I was proud of Noah for memorizing all his lines and remembering when to say them. They were both great. Jonah was so excited to finally have a turn to be on that stage. The following week Jason and I attended a formal ball entitled "King Of Kings" it was put on by my wonderful trainer and friend Dan and his wonderful wife Myrna. They wanted to have a night honoring the True king and share the real meaning of Christmas. They did it beautifully. I had never been to anything quite like it. It was at the most beautiful hotel, they had a full orchestra, beautiful music, and a wonderful message. Jason and I had a blast getting all dressed up and are still talking about what a great time we had. I recently got approved to go to UCLA for further testing. I will make an appointment in January after they reveiw my files. All of the doctors that i have seen so far agree that I have some form of a muscle wasting disease but are unclear as to what it is. They are hopeful that UCLA will have answers for me. I joke that they are going to name a disease after me. I see improvements from working with the trainer, some days are good and to be honest some days are just plain hard. This is mostly due to the fact that I just have little energy. I feel like I'm pregnant without any light at the end of the tunnel. I fight harder on those days to get my perspective in line with God's and he usually brings me right back to where I need to be. I have a daily reminder in my daughter of what he's capable of and that helps tremendously :) She encourages me to fight through it and to do what I need to do. We are loving the holidays and looking forward to celebrating his birth with family and friends.