Counting Our Blessings

Counting Our Blessings

Tuesday, May 15, 2012

Unexpected Phone Call

Today I had hoped to give a recap on my Wonderful Mothers Day.  Which I will in another post soon.  Instead I need to tell you all about an unexpected phone call and ask for some urgent prayer.  Noah's cardiologist called today.  He told me that he had met with the Electrophysiologist he was referring us to and talked about Noah's case for over two hours.  He feels that after talking with the Cardiologist that Noah Urgently needs to have a heart cathertization and heart muscle biopsy.  He began to talk about how they both feel that he has heart block, but also may have Restrictive Cardio Myopathy or  Brugada Syndrome.  Wow that was a lot for this momma to hear.  While I'm very thankful that we are finally headed in the direction of answers, it is going to be hard to watch our boy go through such heavy things.  Many of you know how excited he was to be granted some limited play.  Now we have to tell him that it has been taken away once again.  My heart just breaks as I know he is going to be devestated to hear this as well as the upcoming tests he thought he did not have to have.  Please pray for his heart, that the Lord would give him peace and understanding.  That he would understand how the lord is using him and consider it pure joy.  Please also pray for Jason and I as we tell him, that the lord would give us the words. We plan to take him out tomorrow so that Jason and I have time to let this settle in and pray over this difficult conversation.  They have put the request in for the procedure and are thinking this will happen the beginning of June.  Thank you all for the many ways you have loved on us and walked through this with us.  We long to have all these health struggles behind us soon but also do not want to miss what God is doing in the process.


4 comments:

  1. Thinking about you all and praying for wisdom in this situation and for Noah's health.

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  2. Praying for the LORD to grant you the strength and wisdom needed for the difficult days ahead. Praying for Noah's heart to be strengthened, and for his mind to understand how much God loves him, even when life is hard. (((hugs))) Veronica Sansonetti

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  3. I'll be praying for the Lord's calming peace upon your family and especially for Noah. I had that procedure a few months ago and I was nervous. I can't imagine what your little guy may be thinking. Mine was done before I knew it. I'll be asking the lord for complete healing of Noah's heart. May the lord bless you all and keep you as he strengthens your faith. You guys have been tested over and over. Keep the faith.
    George & Josephine

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  4. I can't imagine what you are going through Melody but I am always encouraged by the hope and perspective in which you write your blog posts. What a sweet-special family you have and what a Gracious God He is.

    Love,
    Charissa

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