Unexpected Phone Call

Today I had hoped to give a recap on my Wonderful Mothers Day.  Which I will in another post soon.  Instead I need to tell you all about an unexpected phone call and ask for some urgent prayer.  Noah's cardiologist called today.  He told me that he had met with the Electrophysiologist he was referring us to and talked about Noah's case for over two hours.  He feels that after talking with the Cardiologist that Noah Urgently needs to have a heart cathertization and heart muscle biopsy.  He began to talk about how they both feel that he has heart block, but also may have Restrictive Cardio Myopathy or  Brugada Syndrome.  Wow that was a lot for this momma to hear.  While I'm very thankful that we are finally headed in the direction of answers, it is going to be hard to watch our boy go through such heavy things.  Many of you know how excited he was to be granted some limited play.  Now we have to tell him that it has been taken away once again.  My heart just breaks as I know he is going to be devestated to hear this as well as the upcoming tests he thought he did not have to have.  Please pray for his heart, that the Lord would give him peace and understanding.  That he would understand how the lord is using him and consider it pure joy.  Please also pray for Jason and I as we tell him, that the lord would give us the words. We plan to take him out tomorrow so that Jason and I have time to let this settle in and pray over this difficult conversation.  They have put the request in for the procedure and are thinking this will happen the beginning of June.  Thank you all for the many ways you have loved on us and walked through this with us.  We long to have all these health struggles behind us soon but also do not want to miss what God is doing in the process.