Thursday, May 31, 2012
Thank you all so much for your patience. I so appreciate all your calls and texts. It has been a hard day and we have been processing all that the doctor has shared with us. We ask that you would be sensitive with the following information that we share. We have not had a chance to talk to Noah today and are unsure how much information we want to convey to him at this time. Noah did amazing today. He did not seem nervous and handled things like a pro. The procedure went very smoothly. He is back home and doing well. After two hours the doctor came out and shared with us the following results. He said that Noah in fact does have Restricted Cardiomyopathy and possibly some other myopathies. He talked about Noah needing a pacemaker, defibrilator and a heart transplant. This news hit us like a ton of bricks and we have been trying to wrap our heads around everything. We are in communication with Hannah's doctor and hoping to get a more clearer picture of what lies ahead and when. We have a ton of questions and not a lot of answers at this point. Our hearts are breaking as we think about telling Noah that he will not be able to go back to normal activity. But we are also thankful for how the Lord has worked and protected Noah this far. We honestly can not imagine going through this hard season without the hope of christ. Please pray for us as we endure many visits and seek many answers. Pray for strength, peace, comfort, understanding and of coarse Total healing(we have seen him do it before :) ) We are so grateful for you all and are going to need you more than ever.