Counting Our Blessings

Counting Our Blessings

Thursday, May 31, 2012

Heavy News

Thank you all so much for your patience.  I so appreciate all your calls and texts.  It has been a hard day and we have been processing all that the doctor has shared with us.  We ask that you would be sensitive with the following information that we share.  We have not had a chance to talk to Noah today and are unsure how much information we want to convey to him at this time.  Noah did amazing today.  He did not seem nervous and handled things like a pro.  The procedure went very smoothly.   He is back home and doing well.  After  two hours the doctor came out and shared with us the following results.  He said that Noah in fact does have Restricted Cardiomyopathy and possibly some other myopathies.  He talked about Noah needing a pacemaker, defibrilator and  a heart transplant. This news hit us like a ton of bricks and we have been trying to wrap our heads around everything.  We are in communication with Hannah's doctor and hoping to get a more clearer picture of what lies ahead and when.  We have a ton of questions and not a lot of answers at this point.  Our hearts are breaking as we think about telling Noah that he will not be able to go back to normal activity.  But we are also thankful for how the Lord has worked and protected Noah this far.  We honestly can not imagine going through this hard season without the hope of christ.  Please pray for us as we endure many visits and seek many answers.  Pray for strength, peace, comfort, understanding and of coarse  Total healing(we have seen him do it before :) )  We are so grateful for you all and are going to need you more than ever.

10 comments:

  1. Feeling the heaviness of this news and praying for you all.

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  2. Holding all of you in our hearts and in our prayers, dear Lietzaus.

    ~Tom and Sue

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  3. Dear friends,
    Our hearts are heavy right along with yours. We agree with you that this would be too much to bear without the hope of Christ. Because of His great love for you, His sacrifice, His promises, and His power, there is always reason to HOPE. And we HOPE with you, prayerfully. With much love for each of you, Team Thoennes

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  4. We are united with you in prayer. Praying for the Lord's perfect PEACE to reign in your hearts tonight and through this whole process. Love to you all.

    The McDaris Family

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  5. Praying for His comfort and strength. What a beautiful bond Noah and Hannah will have through the years as they remind each other of God's faithfulness when they were little and needed His tender care. When you feel heavy, remember, the same God who placed those two together from across the world, is the One who will see your precious family through.

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  6. Haugens join the many warriors praying for your family. Praying the Lord sustains you and calms you in the midst of the storm. We love you!
    Lisa and Jerrel

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  7. Praying alongside these other families for you all, especially as you decide how to best tell Noah. It is in times like this when we can best be priests to one another as we lift you up to our Father.

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  8. Grace to your precious family.

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  9. We have a friend who had a heart transplant almost thirty years ago (and a second one about ten years ago). He's ministering to transplant patients at Stanford University right now. If you'd like, I can connect you up with him and he may be able to give you counsel about how the process goes and what you should be looking for. You're in my prayers.

    Blessings,
    Ralph Wagenet

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  10. Praying, too, over here. So sorry for all you have to endure these days, but grateful that the Lord is able to sustain you with strength, peace and even joy in the midst of it. Will be praying for you all, but esp. Noah as his little mind and heart tries to internalize all that is happening - esp. that he sees and knows Christ deeply and meaningfully during this time; that his heart would not grow bitter, but that he would know God's goodness and grace, even when he doesn't understand. Much love and many prayers your way.

    Melissa

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