Short Update

Today Noah had his appointment at the UCLA transplant clinic.  It was the usual visit of labs, echo, and meeting with each member of the team. The visit went great and everything looked the same. We asked our usual question of have you seen Noah's name come through for a heart. They see his name come up often but not as number one.  This just means he is close, usually within the top three for a heart his size but really no one knows when it will be his turn.  I get impatient because I want Noah to feel better, I want to not live my life in limbo,  and because I fear for his life.   However today another thought came to my mind.  I thought about Noah's future donor.   I told Jason that I don't want to be impatient.  I want to be grateful that we have this time and that Noah is doing well.  I realized somewhere out there a family gets to have more time with the child they will  one day lose,  a parent who will make the decision to give our son the gift of living more years gets to hug her baby another day.  The longer we wait the longer they have to hold and love that sweet child.  So I will be patient, I will trust, and I will be thankful.


For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord. Romans 8:38-39