Counting Our Blessings

Counting Our Blessings

Wednesday, February 29, 2012

A Brighter Day

I have to start off by saying that this appointment did not go anything like we expected. We had the usual ultrasound of the heart and then waited to see the doctor. The doctor started off by saying that he does not feel like a cath procedure is necessary at this time. He looked over his file from UCLA and asked us a lot of questions. Without putting down the other doctors, he explained to us that he did not feel that what Noah has is Restrictive Cardiomyopathy. He understands why they would feel that way but does not see enough to convince him to put Noah through all the risk of a cath lab. He does believe that something is wrong given the abnormal EKG's on every reading and believes that it is an electrical issue passed down from me and that he most likely has whatever muscle myopathy I have. This is what Jason and I have felt in our hearts since the beginning. He is going to do a tread mill stress test to rule some things out and wans to see the readings from his event monitor. He might do an EP electrical study or cath test in the future but wants to take a slower approach to figure things out. I was happy about this. We of coarse want answers but also do not want to put Noah through unnecessary testing just to rule out what he thinks is not there. I hope this is making sense. We have truly seen and felt the Lord today. We have battled our insurance and ran into so many road blocks trying to get into CHOC. It really felt like today that the Lord showed us why he wanted us at CHLA. Noah was thrilled with the appointment. He did not have to be poked today and was told he was not having the cath test. He still has not been cleared to run and resume normal activity until we get the results of his stress test. They are suppose to call us soon to make that appointment. I cannot tell you how much Noah's mood has changed since this appointment. He is beaming and so looking forward to celebrating his birthday in just a few short days.

As for me I received my approval for my biopsy so I will be scheduling that tomorrow. Not looking forward to it but i know it's necessary :( Pray for continued strength for me. My hands have really been bothering me. The sooner we get a diagnoses on me the closer we will be to figuring out what is also going on with Noah. Whatever is going on with his heart we have caught it at an early stage so that is good.

Jonah has his first round of allergy testing tomorrow morning with the second round following next week. Not sure how to pray about this one. I kinda hope something shows up so we can help him but at the same time I feel bad about weekly allergy shots. hmm just pray the Lord's will be done. He has an apt. on the 14th with the ENT doctor to discuss getting his tonsils removed.

Hannah has an appointment next month and we will talk about scheduling her cath lab test then. she is doing fine but the test is necessary to check her pressures before the next big surgery.

Jason is very healthy praise the Lord but it is so difficult for him to watch his family go through so much. We both know this is where God is using us and we continue to cling to his promises every day.

We are so thankful for all of your prayers we truly can't say it enough. We have been blessed by so many of you.

Linda Howington Donna showed me the song that you personalized with Noah's name on it and it touched my heart. I love that song and to sing it with his name in it brought tears to my eyes.
We do have a maker and he has formed our hearts.

1 comment:

  1. You have so much going on right now and I pray God will just hold you tight! Praying His richest blessings for your family!!! XOXO