My visit was very promising as well. These Neurologist know their stuff. You can tell they have a lot of experience with Muscle disease patients and I was very thankful for that. They want to do a muscle biopsy on me :( Ouch! They feel this is important to gather specific genes from the muscle tissue. These genes will give them more of an idea of what groups I fall under and rule out others. He had his top three that he thinks I fit the category for one being Limb Girdle disease and two others with complicated names that I can not remember. They clearly saw that I had a muscle disease and pointed out all of the same muscle weakness the other doctors had pointed out. We wait for insurance to authorize the muscle biopsy which could take a few weeks and then schedule it at UCLA. Then we will follow up with them on how they will further proceed. I'm hopeful for a diagnosis and was pleased to hear them say how they have come along way in finding treatments and advances to help combat these muscle diseases. I LOVED hearing that. Although we still don't have answers we trust that the Lord does and in his time hopefully we will find out. I'm very tired so I hope I explained things well. Feel free to ask us any questions.
Thanks for all your prayers, meals, cards and sweet gifts. We feel so blessed by all of you. Your love and support is making it easier to walk through this.