A Trip To CHLA

Well today was another day full of excitement. Noah woke up with a bad rash and puffy lip. We had no idea where to take him so we went back to his old pediatric doc. We discovered that the rash was hand, foot, mouth virus. This poor guy has had strep twice and now this virus all in the last eight weeks. They were very concerned about his heart handling all these viruses. Given the chest pain he had yesterday and now this virus she thought he needed to be seen right away by a cardiologist. Since we don't have one yet we went to CHLA hospital. They evaluated him, did an ekg and xrays. They agreed that he needed further testing and a cath lab test done but that all these could wait to be scheduled. We will call tomorrow to get in next week to see a new Cardiologist at CHLA. We are sad about this because we LOVE Dr. Chang and CHOC but feel like maybe the Lord has been leading us to CHLA all along. We have been fighting so hard and coming up against so many road blocks that maybe this is just the place he has wanted us all along. We will lay this all at his feet and take it step by step. Its not about our plans but his ultimate plan and we trust in that completely. He has never failed us even in the hardest of times. His love never fails. Noah was sad to miss his co-op again today and super sad about missing friday school. It just kills me to see him so disheartened. The ER doc said no activity until cleared by his cardiologist. He said if he develops a cough, worse chest pains or labored breathing to bring him back in.

Please continue to lift our family up in prayer. We are all learning to lean on the Lord, to accept help,to have patience, and to lay our burdens down.