Monday, March 26, 2012
Not The Results We Expected
My heart is grieving with sadness. We had expected and hoped that Noah's test would go well today and they would allow him to go back to normal activity. Sadly this was not the case. During Noah's treadmill stress test every time they increased the pace they expected his blood pressure to increase and it did the opposite it actually lowered his blood pressure and he became more fatigued with every intensity and incline. The doctor is very concerned as are we. He feels strongly that whatever Myopathy I have he does as well. He wants to talk with my neurologist who is helping diagnose me, he also wants all of his work up that was done from UCLA. We see him next wednesday and will decide then how he wants to proceed. He might have to do the heart biopsy cath after all but wants to avoid it if necessary which is why he wants to talk to my Neurologist to get the results of my recent Biopsy. He also mentioned that he thinks he may have Desmin Myopathy. Noah was very disheartened as he expected to hear he could run and play sports. He said he could lightly run but to listen to his body and if he got tired to rest. Our hearts our heavy but Sundays message was a great reminder of God using these things to discipline or refine. We will continue to hold fast to his truths and cling to him even more. Please pray for Noah as he takes this all in and tries hard to understand it all. Pray for wisdom for the doctors and for Jason and I as we juggle the many physical needs in our family. We love and thank you all for your amazing support during this hard season.